Four-year-old Frances Brown loves being girly—she wants to be a princess. Her favorite color is pink. And she’s also the bravest person her family knows.
When she was just a few months old, Frances was diagnosed with macrocephaly-capillary malformation. The condition, which is so rare only 130 people worldwide have been diagnosed, causes abnormal body and head growth, as well as neurological and limb abnormalities.
For Frances, who also suffers seizures and is hearing impaired, the condition has led to 14 surgeries and countless days and nights—including some holidays and birthdays—at Children’s Healthcare of Atlanta.
Frances is not alone. The holidays are a time of joy and hope—of togetherness and family. But it can also be a difficult time, especially for children who must celebrate from their hospital beds. This year, at least 1,280 sick and injured children will spend their holidays at Children’s Healthcare of Atlanta. But you can brighten their day with one simple action.
We invite you to watch this special video, which shows a typical day at Children’s. Witness our patients’ triumphs. Their struggles. Their hope. You can even see Frances in the video, as she wears a bright pink bow and reads in the Max Brown Family Resource Library—a special part of our hospital funded by a generous donor.
In return, we ask you to take a moment to share your message with our patients. Share your love. Your encouragement. Your warmest wishes for the holiday season. All that matters is that you share from your heart.
Our goal is to gather 1,280 messages—one for each patient staying at Children’s—by Dec. 15. During the last few weeks of the year, we’ll share your message through the TVs in the hospitals—just in time to brighten a child’s holiday.
Visit ShareWithChildrens.org to watch the video. And don’t forget to share your message of hope today.
Children’s Healthcare of Atlanta, a not-for-profit organization, is committed to enhancing the lives of children through excellence in patient care, research and education. Managing more than half a million patient visits annually at three hospitals and 17 neighborhood locations, Children’s is one of the largest clinical care providers for children in the country. With generous philanthropic and volunteer support, Children’s has made an impact in the lives of children in Georgia, the United States and throughout the world.
Visit ShareWithChildrens.org for more information.
My beautiful, 5 year old daughter Ryann, was diagnosed with Acute Lymphoblastic Leukemia in October of 2010. She stayed in Children’s Healthcare of Atlanta for one week, and she constantly asks if she can “go back,” because it was so much fun for her. The nurses and staff made it a fun experience for her.
We love collecting crafts and activities from our school to send every year at Christmas. Our prayer is that you enjoy your time there…even though it is not home.
The Hayes Family
Kim-
Thanks for sharing that beautiful story. We’re so happy Ryann enjoyed her time there, but we hope she never has to go back! Your story is an inspiration.
Thank you and CHOA for featuring our Frances. CHOA is a wonderful place with such loving people and skilled physicians. We feel blessed to be part of it all! Can you please tell me how I can purchase a few paper copies of this issue? Thanks so much! A
The copies of Encore are on their way. Happy holidays!